By: Edmund C. Gbarwee, Nimba D-9 TV Public Health Reporter, ceo@onenimbahouse.com, nimbad9tv2018@gmail.com, +231778070604
Nimba County, Liberia: – In the heart of Rural Nimba County, Liberia, a transformative movement is underway, aimed at dispelling the myths surrounding epilepsy and providing crucial support to those affected by this often-misunderstood condition. The “Help Minimize Epilepsy in Liberia” initiative, which took flight in August 2022, has become a beacon of hope for many in the Yarwin Mehnsonnoh Health District—a region notably impacted by epilepsy.
A Lifeline for Rural Communities
The “Help Minimize Epilepsy in Liberia” campaign was established as a community-based mental health initiative to address the pressing needs of individuals living with epilepsy. This pilot project, which began with a small group of dedicated volunteers, has since grown into a vital network of support. It now serves approximately 268 clients who have braved significant stigma to seek treatment and care.
The campaign operates across several local health facilities including Boyee Clinic, Kwendin Clinic, Zahnzayee Community and Zahnzayee Baptist Clinic, Mehnla Clinic, and Zekepa Health Center & Maternal Waiting Home in Yarwin Mehnsonnoh Health District. Despite the formidable barriers of stigma and geographic isolation, clients travel from as far as Rivercess, Bong, and Grand Bassa counties to access essential medications and support.
Real Stories, Real Impact
The journey of individuals like McArthur Waltee Kehyee highlights the profound impact of this initiative. A native of Gbaa, a town known for its high prevalence of epilepsy and corresponding stigma, Kehyee’s personal experience with the condition ignited his passion for change. His involvement in Phase III of the campaign has been instrumental in connecting the initiative with additional resources and partners.
Similarly, volunteers such as Bedirhan Pir, a Paramedic from Turkey based in UK who also served as Paramedic at MNG Gold in Kokoyah,Bong County Liberia and Saban Seyit Kumas Survey Manager at BMMC, have made significant contributions. Their recent donation of US$200 will fund a month’s worth of wellness support for 20 clients. Their involvement underscores the global solidarity that this cause has garnered.
Overcoming Stigma and Expanding Care
The stigma surrounding epilepsy remains a significant hurdle in Liberia. Many communities harbor misconceptions about the condition, leading to discrimination and isolation of those affected. The “Help Minimize Epilepsy in Liberia” campaign actively works to challenge these prejudices through education and outreach.
Elders, Religious Leaders, Educators, Social Workers, Local Musicians, and Youth Groups are increasingly involved in this transformative work, advocating for a shift in societal attitudes and encouraging communities to embrace and support their neighbors with epilepsy. This collective effort aims to foster an environment where individuals with epilepsy can live with dignity and receive the care they need.
The Road Ahead: Challenges and Opportunities
Despite the progress, the road ahead remains challenging. The government of Liberia has made strides in addressing mental health needs, but there is still a considerable gap in resources and support for epilepsy care. The community-based initiative has stepped in to fill this void, but sustained efforts and increased funding are crucial for long-term success.
The campaign continues to seek support from individuals, organizations, and the broader international community. By leveraging social media and soliciting donations, the initiative aims to expand its reach and improve the quality of life for more individuals affected by epilepsy.
A Call to Action
The “Help Minimize Epilepsy in Liberia” campaign exemplifies the power of community-driven change. As more volunteers and contributors join this noble cause, the initiative not only brings hope to those struggling with epilepsy but also sets a precedent for how grassroots efforts can address public health challenges.
For those inspired to contribute or get involved, there are numerous ways to support this vital cause. Donations, volunteer work, and advocacy are all crucial in driving this initiative forward and helping to eradicate the stigma associated with epilepsy.
For your donations and contributions please contact our:
Lead Consultant Pharmacist Joseph Saye Quoi on +231881687596
Diaspora Chairperson Pauline Land: +19107299204 and
our Liberia Chairperson Antonette Lapue Johnson on +231886481132
For other inquiries contact: +231778070604
Email: helpminimizeinliberia@gmail.com
The work being done in Rural Nimba County is a testament to the resilience and compassion of a community coming together to make a difference. Through continued support and dedication, there is hope for a future where individuals with epilepsy in Liberia can thrive and be fully integrated into their communities.
“THERE IS STILL HOPE”
