Liberia

By: Ambassador Edmund Gbarwee/Lead Advocate-“Help Minimize Epilepsy in Liberia”

Edited by: Lewis Glay, email: lewisglay@gmail.com

Zekepa, the proposed Capital of Liberia became a focal point for mental health advocacy during the recent World Mental Health Day celebration in Nimba County.

Held October 10, 2024, the event themed: “Workplace Mental Health” and locally titled “Let’s Zero the Stigma Associated with Epilepsy Together,” brought together senior state actors, including Nimba County Health Officer Doc Ponnie Robertlee Dolo, Superintendent Kou Meapeh Gono, local Stakeholders, amongst other participants, to confront the critical mental health challenges faced by individuals living with epilepsy in low-income settings like Yarwin Mehnsonnoh Health District and beyond.

Epilepsy is a neurological disorder marked by recurrent seizures that affects millions globally. While manageable with appropriate treatment, the stigma surrounding this condition often prevents individuals from seeking the help they need. In Liberia, where health resources are limited and public awareness is low, individuals with epilepsy face severe challenges that complicate their condition.

The financial impact of epilepsy in Liberia is substantial, affecting not only those diagnosed but their families and communities. The following are some intricacies:

Access to essential medications is crucial for managing epilepsy is a big challenge. In a country where health infrastructure is still developing, the cost of these medications can be a barrier. Many families find themselves unable to afford ongoing treatment, leading to untreated conditions and escalating healthcare costs.

Frequent seizures can significantly impair an individual’s ability to work, resulting in lost income and putting additional financial strain on families. This cycle of economic hardship often pushes families further into poverty.

Family members frequently become caregivers, which can limit their ability to work or pursue education. This added responsibility can create emotional and financial stress, compounding the challenges faced by families affected by epilepsy.

The stigma surrounding epilepsy leads to social exclusion, making it difficult for affected individuals to find employment or participate in community life. This isolation contributes to a cycle of poverty and mental health challenges.

In response to these challenges, Edmund C. Gbarwee, a public health advocate and graduate of The Adventist University of West Africa, and their team founded “Help Minimize Epilepsy in Liberia” in 2021. With the motto “There is Still Hope,” this initiative aims to raise awareness and support individuals living with epilepsy in the Yarwin Mehnsonnoh Health District, particularly in the Blinlon Administrative District.

The initiative has garnered significant support, including a notable contribution from Vice President Jeremiah Kpan Koung, who donated essential medications during the World Mental Health Day celebration including the District Representative Taa Z. Wongbe. This act underscored the government’s commitment to addressing the challenges faced by those living with epilepsy.

During the event, Nimba County Superintendent Kou Meapeh Gono highlighted the community’s efforts and emphasized the need for continuous support. “This is not a vaccine to take once but something you need to engage with continuously to achieve wellness,” she remarked, encouraging families to rally behind their loved ones.

Local authorities, healthcare professionals, and community members are uniting to dismantle the stigma surrounding epilepsy. This collaborative approach aims to improve healthcare access and promote education about epilepsy.

 Doc Ponnie Robertlee Dolo, Nimba County Health Officer, disclosed that there are plans to enhance local health facilities to better serve individuals with epilepsy and other health conditions.

The fight against epilepsy in Liberia is gaining momentum, with initiatives like “Help Minimize Epilepsy in Liberia” paving the way for transformative change. By raising awareness and fostering understanding, the community is making strides towards reducing stigma and improving the lives of those affected.

In a context where economic pressures and social stigma significantly impact the quality of life, it is vital to recognize and support individuals living with epilepsy. Together, Liberians can strive for a future where epilepsy is treated with understanding and compassion, allowing everyone to lead fulfilling and productive lives.

As we commemorate World Mental Health Day and reflect on local efforts in Liberia, it is evident that addressing epilepsy requires a comprehensive approach. Through awareness, community support, and advocacy, we can dismantle the barriers faced by individuals with epilepsy, fostering a society that champions inclusivity and compassion for all. The commitment shown by leaders like Vice President Jeremiah Kpan Koung serves as a beacon of hope, reminding us that together, we can create a brighter future for individuals living with epilepsy in Liberia and beyond.